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Robin Hayeems

TitleScientist
InstitutionThe Hospital for Sick Children
DepartmentChild Health Evaluative Sciences
Address555 University Avenue
Toronto ON M5G 1X8
Phone416-813-1500
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    Collapse Biography 
    Collapse education and training
    University of Toronto, TorontoPhD2007Public Health Sciences & Collaborative Program in Bioethics
    Johns Hopkins, BaltimoreScM2001Genetic Counselling
    University of Toronto, TorontoM.Sc.1998Medical Science
    McGill University, MontrealBSc1996Psychology
    Collapse awards and honors
    2016Labelle Lectureship Award Nomination, Centre for Health Economics and Policy Analysis
    2011 - 2013Postdoctoral Fellowship, Cystic Fibrosis Canada
    2011 - 2012Postdoctoral Fellowship (Declined), Canadian Institutes of Health Research (CIHR)
    2008 - 2010Postdoctoral Fellowship, Canadian Institutes of Health Research (CIHR)/Canadian Health Services Research Foundation (CHSRF)
    2004 - 2007Doctoral Research Award, Canadian Institutes of Health Research (CIHR)
    2002 - 2004Open Graduate Fellowship (Doctoral), University of Toronto
    1996 - 1998Open Graduate Fellowship (Master’s), University of Toronto
    1997 - 1998Bertha Rosenstadt Student Research Award, University of Toronto

    Collapse Overview 
    Collapse overview
    Dr. Robin Hayeems is a Scientist in Child Health Evaluative Sciences (CHES) at The Hospital for Sick Children (SickKids) and an Associate Professor in the Institute of Health Policy, Management and Evaluation (IHPME) at the University of Toronto. Dr. Hayeems is trained in genetic counselling (ScM, Johns Hopkins University), public health and bioethics (PhD, University of Toronto), health policy research (University of Toronto, IHPME Postdoctoral Fellowship), and health services research (University of Toronto, Institute for Clinical and Evaluative Sciences Postdoctoral Fellowship).

    Hayeems’ research focuses on the development and implementation of high quality screening and diagnostic tools for the maternal-child health context. Using applied health services and policy research methods, her work focuses on the delivery, evaluation, and governance of genomic and other screening/diagnostic tools in the prenatal, newborn, and early childhood periods. As a member of the Ontario Maternal Child Screening Advisory Committee, her work informs and is informed by policy development in this area.


    Collapse Research 
    Collapse research activities and funding
         (Boycott K, Brudno M)
    Genome Canada
    Utility and Economic Evaluation Component (Activity 4). Harnessing multi-omics to deliver innovative diagnostic care for rare genetic diseases in Canada (SOLVE-RD Canada)
    Role: Co-Lead

         (Hayeems RZ, Meyn MS)
    Norm Saunders Complex Care Initiative Grant Competition
    The role of genomic sequencing as a diagnostic tool for children with medical complexity
    Role: Principal Investigator

         (Hayeems, RZ)
    Centre for Genetic Medicine Catalyst Grant
    Diagnostic uncertainty generated by newborn screening for inborn errors of metabolism: Parent, provider, and programmatic perspectives
    Role: Principal Investigator

         (Potter, B.)
    Canadian Institutes of Health Research (CIHR)
    Designing interventions to improve delivery of health care for children with inherited metabolic diseases: Family and provider perspectives
    Role: Co-Investigator

         (Potter BK, Chakraborty P, Kronick JB.)
    Canadian Institutes of Health Research (CIHR)
    Canadian Inherited Metabolic Disease Research Network: Achieving the 'triple aim' for inborn errors of metabolism
    Role: Collaborator

         (Miller FA, Hogarth S, Clifford T.)
    Canadian Institutes of Health Research (CIHR)
    "Blockbuster Diagnostics?” The political economy of diagnostic innovation in comparative perspective
    Role: Co-Investigator

         (Hayeems, RZ)
    SickKids Foundation/Canadian Institutes of Health Research (CIHR)
    Costs and clinical consequences of pediatric whole genome sequencing compared to conventional genetic tests
    Role: Principal Investigator

         (Hayeems, RZ)
    Canadian Institutes of Health Research (CIHR)
    The clinical utility of genomic testing: Development and validation of novel outcome measures
    Role: Principal Investigator

    Collapse Bibliographic 
    Collapse selected publications
    Publications listed below are automatically derived from MEDLINE/PubMed and other sources, which might result in incorrect or missing publications. Faculty can login to make corrections and additions.
    List All   |   Timeline
    1. Hayeems RZ, Luca S, Ungar WJ, Bhatt A, Chad L, Pullenayegum E, Meyn MS. The development of the Clinician-reported Genetic testing Utility InDEx (C-GUIDE): a novel strategy for measuring the clinical utility of genetic testing. Genet Med. 2019 Jul 31. PMID: 31363181.
      View in: PubMed
    2. Cusimano MC, Simpson AN, Han A, Hayeems R, Bernardini MQ, Robertson D, Kives SL, Satkunaratnam A, Baxter NN, Ferguson SE. Barriers to care for women with low-grade endometrial cancer and morbid obesity: a qualitative study. BMJ Open. 2019 Jun 27; 9(6):e026872. PMID: 31248922.
      View in: PubMed
    3. Nicholls SG, Etchegary H, Tessier L, Simmonds C, Potter BK, Brehaut JC, Pullman D, Hayeems RZ, Zelenietz S, Lamoureux M, Milburn J, Turner L, Chakraborty P, Wilson BJ. What is in a Name? Parent, Professional and Policy-Maker Conceptions of Consent-Related Language in the Context of Newborn Screening. Public Health Ethics. 2019 Jul; 12(2):158-175. PMID: 31384304.
      View in: PubMed
    4. Karaceper MD, Khangura SD, Wilson K, Coyle D, Brownell M, Davies C, Dodds L, Feigenbaum A, Fell DB, Grosse SD, Guttmann A, Hawken S, Hayeems RZ, Kronick JB, Laberge AM, Little J, Mhanni A, Mitchell JJ, Nakhla M, Potter M, Prasad C, Rockman-Greenberg C, Sparkes R, Stockler S, Ueda K, Vallance H, Wilson BJ, Chakraborty P, Potter BK. Health services use among children diagnosed with medium-chain acyl-CoA dehydrogenase deficiency through newborn screening: a cohort study in Ontario, Canada. Orphanet J Rare Dis. 2019 03 22; 14(1):70. PMID: 30902101.
      View in: PubMed
    5. Szego MJ, Meyn MS, Shuman C, Zlotnik Shaul R, Anderson JA, Bowdin S, Monfared N, Hayeems RZ. Views from the clinic: Healthcare provider perspectives on whole genome sequencing in paediatrics. Eur J Med Genet. 2019 May; 62(5):350-356. PMID: 30503855.
      View in: PubMed
    6. Costain G, Callewaert B, Gabriel H, Tan TY, Walker S, Christodoulou J, Lazar T, Menten B, Orkin J, Sadedin S, Snell M, Vanlander A, Vergult S, White SM, Scherer SW, Hayeems RZ, Blaser S, Wodak SJ, Chitayat D, Marshall CR, Meyn MS. De novo missense variants in RAC3 cause a novel neurodevelopmental syndrome. Genet Med. 2019 04; 21(4):1021-1026. PMID: 30293988.
      View in: PubMed
    7. Hayeems RZ, Boycott KM. Genome-wide sequencing technologies: A primer for paediatricians. Paediatr Child Health. 2018 May; 23(3):191-197. PMID: 29769805.
      View in: PubMed
    8. Hayeems RZ, Bhawra J, Tsiplova K, Meyn MS, Monfared N, Bowdin S, Stavropoulos DJ, Marshall CR, Basran R, Shuman C, Ito S, Cohn I, Hum C, Girdea M, Brudno M, Cohn RD, Scherer SW, Ungar WJ. Care and cost consequences of pediatric whole genome sequencing compared to chromosome microarray. Eur J Hum Genet. 2017 12; 25(12):1303-1312. PMID: 29158552.
      View in: PubMed
    9. Barg CJ, Miller FA, Hayeems RZ, Bombard Y, Cressman C, Painter-Main M. What's Involved with Wanting to Be Involved? Comparing Expectations for Public Engagement in Health Policy across Research and Care Contexts. Healthc Policy. 2017 11; 13(2):40-56. PMID: 29274226.
      View in: PubMed
    10. Hayeems RZ, Miller FA, Vermeulen M, Potter BK, Chakraborty P, Davies C, Carroll JC, Ratjen F, Guttmann A. False-Positive Newborn Screening for Cystic Fibrosis and Health Care Use. Pediatrics. 2017 Nov; 140(5). PMID: 29025964.
      View in: PubMed
    11. Lionel AC, Costain G, Monfared N, Walker S, Reuter MS, Hosseini SM, Thiruvahindrapuram B, Merico D, Jobling R, Nalpathamkalam T, Pellecchia G, Sung WWL, Wang Z, Bikangaga P, Boelman C, Carter MT, Cordeiro D, Cytrynbaum C, Dell SD, Dhir P, Dowling JJ, Heon E, Hewson S, Hiraki L, Inbar-Feigenberg M, Klatt R, Kronick J, Laxer RM, Licht C, MacDonald H, Mercimek-Andrews S, Mendoza-Londono R, Piscione T, Schneider R, Schulze A, Silverman E, Siriwardena K, Snead OC, Sondheimer N, Sutherland J, Vincent A, Wasserman JD, Weksberg R, Shuman C, Carew C, Szego MJ, Hayeems RZ, Basran R, Stavropoulos DJ, Ray PN, Bowdin S, Meyn MS, Cohn RD, Scherer SW, Marshall CR. Improved diagnostic yield compared with targeted gene sequencing panels suggests a role for whole-genome sequencing as a first-tier genetic test. Genet Med. 2018 04; 20(4):435-443. PMID: 28771251.
      View in: PubMed
    12. Cohn I, Paton TA, Marshall CR, Basran R, Stavropoulos DJ, Ray PN, Monfared N, Hayeems RZ, Meyn MS, Bowdin S, Scherer SW, Cohn RD, Ito S. Genome sequencing as a platform for pharmacogenetic genotyping: a pediatric cohort study. NPJ Genom Med. 2017; 2:19. PMID: 29263831.
      View in: PubMed
    13. Oei K, Hayeems RZ, Ungar WJ, Cohn RD, Cohen E. Genetic Testing among Children in a Complex Care Program. Children (Basel). 2017 May 22; 4(5). PMID: 28531152.
      View in: PubMed
    14. Hoang N, Hayeems R, Davies J, Pu S, Wasim S, Velsher L, Aw J, Chénier S, Stavropoulos DJ, Babul-Hirji R, Weksberg R, Shuman C. Does personal genome testing drive service utilization in an adult preventive medicine clinic? J Community Genet. 2017 Jul; 8(3):151-158. PMID: 28374280.
      View in: PubMed
    15. Hayeems RZ, Miller FA, Barg CJ, Bombard Y, Carroll JC, Tam K, Kerr E, Chakraborty P, Potter BK, Patton S, Bytautas JP, Taylor L, Davies C, Milburn J, Price A, Gonska T, Keenan K, Ratjen F, Guttmann A. Psychosocial Response to Uncertain Newborn Screening Results for Cystic Fibrosis. J Pediatr. 2017 05; 184:165-171.e1. PMID: 28279431.
      View in: PubMed
    16. Siddiq S, Wilson BJ, Graham ID, Lamoureux M, Khangura SD, Tingley K, Tessier L, Chakraborty P, Coyle D, Dyack S, Gillis J, Greenberg C, Hayeems RZ, Jain-Ghai S, Kronick JB, Laberge AM, Little J, Mitchell JJ, Prasad C, Siriwardena K, Sparkes R, Speechley KN, Stockler S, Trakadis Y, Wafa S, Walia J, Wilson K, Yuskiv N, Potter BK. Experiences of caregivers of children with inherited metabolic diseases: a qualitative study. Orphanet J Rare Dis. 2016 12 07; 11(1):168. PMID: 27927250.
      View in: PubMed
    17. Anderson JA, Meyn MS, Shuman C, Zlotnik Shaul R, Mantella LE, Szego MJ, Bowdin S, Monfared N, Hayeems RZ. Parents perspectives on whole genome sequencing for their children: qualified enthusiasm? J Med Ethics. 2017 08; 43(8):535-539. PMID: 27888232.
      View in: PubMed
    18. Hayeems RZ, Moore Hepburn C, Chakraborty P, Odame I, Clarke J, Miller FA, Brown AD. Managing sickle cell carrier results generated through newborn screening in Ontario: a precedent-setting policy story. Genet Med. 2017 06; 19(6):625-627. PMID: 27763632.
      View in: PubMed
    19. Bombard Y, Miller FA, Barg CJ, Patton SJ, Carroll JC, Chakraborty P, Potter BK, Tam K, Taylor L, Kerr E, Davies C, Milburn J, Ratjen F, Guttmann A, Hayeems RZ. A secondary benefit: the reproductive impact of carrier results from newborn screening for cystic fibrosis. Genet Med. 2017 04; 19(4):403-411. PMID: 27608173.
      View in: PubMed
    20. Hayeems RZ, Miller FA, Barg CJ, Bombard Y, Kerr E, Tam K, Carroll JC, Potter BK, Chakraborty P, Davies C, Milburn J, Patton S, Bytautas JP, Taylor L, Price A, Gonska T, Keenan K, Ratjen F, Guttmann A. Parent Experience With False-Positive Newborn Screening Results for Cystic Fibrosis. Pediatrics. 2016 09; 138(3). PMID: 27485696.
      View in: PubMed
    21. Hayeems RZ, Miller FA, Barg CJ, Bombard Y, Cressman C, Painter-Main M, Wilson B, Little J, Allanson J, Avard D, Giguere Y, Chakraborty P, Carroll JC. Using Newborn Screening Bloodspots for Research: Public Preferences for Policy Options. Pediatrics. 2016 06; 137(6). PMID: 27244855.
      View in: PubMed
    22. Stavropoulos DJ, Merico D, Jobling R, Bowdin S, Monfared N, Thiruvahindrapuram B, Nalpathamkalam T, Pellecchia G, Yuen RKC, Szego MJ, Hayeems RZ, Shaul RZ, Brudno M, Girdea M, Frey B, Alipanahi B, Ahmed S, Babul-Hirji R, Porras RB, Carter MT, Chad L, Chaudhry A, Chitayat D, Doust SJ, Cytrynbaum C, Dupuis L, Ejaz R, Fishman L, Guerin A, Hashemi B, Helal M, Hewson S, Inbar-Feigenberg M, Kannu P, Karp N, Kim R, Kronick J, Liston E, MacDonald H, Mercimek-Mahmutoglu S, Mendoza-Londono R, Nasr E, Nimmo G, Parkinson N, Quercia N, Raiman J, Roifman M, Schulze A, Shugar A, Shuman C, Sinajon P, Siriwardena K, Weksberg R, Yoon G, Carew C, Erickson R, Leach RA, Klein R, Ray PN, Meyn MS, Scherer SW, Cohn RD, Marshall CR. Whole Genome Sequencing Expands Diagnostic Utility and Improves Clinical Management in Pediatric Medicine. NPJ Genom Med. 2016 Jan 13; 1. PMID: 28567303.
      View in: PubMed
    23. Andrighetti H, Semaka A, Stewart SE, Shuman C, Hayeems R, Austin J. Obsessive-Compulsive Disorder: The Process of Parental Adaptation and Implications for Genetic Counseling. J Genet Couns. 2016 10; 25(5):912-22. PMID: 26639756.
      View in: PubMed
    24. Hayeems RZ, Babul-Hirji R, Hoang N, Weksberg R, Shuman C. Parents' Experience with Pediatric Microarray: Transferrable Lessons in the Era of Genomic Counseling. J Genet Couns. 2016 Apr; 25(2):298-304. PMID: 26259530.
      View in: PubMed
    25. Miller FA, Hayeems RZ, Bombard Y, Cressman C, Barg CJ, Carroll JC, Wilson BJ, Little J, Allanson J, Chakraborty P, Giguère Y, Regier DA. Public Perceptions of the Benefits and Risks of Newborn Screening. Pediatrics. 2015 Aug; 136(2):e413-23. PMID: 26169426.
      View in: PubMed
    26. Miller FA, Cressman C, Hayeems R. Governing population screening in an age of expansion: The case of newborn screening. Can J Public Health. 2015 Apr 29; 106(4):e244-8. PMID: 26285197.
      View in: PubMed
    27. Hayeems RZ, Campitelli M, Ma X, Huang T, Walker M, Guttmann A. Rates of prenatal screening across health care regions in Ontario, Canada: a retrospective cohort study. CMAJ Open. 2015 Apr-Jun; 3(2):E236-43. PMID: 26389102.
      View in: PubMed
    28. Bowdin SC, Hayeems RZ, Monfared N, Cohn RD, Meyn MS. The SickKids Genome Clinic: developing and evaluating a pediatric model for individualized genomic medicine. Clin Genet. 2016 Jan; 89(1):10-9. PMID: 25813238.
      View in: PubMed
    29. Hepburn CM, Cohen E, Bhawra J, Weiser N, Hayeems RZ, Guttmann A. Health system strategies supporting transition to adult care. Arch Dis Child. 2015 Jun; 100(6):559-64. PMID: 25688098.
      View in: PubMed
    30. Hayeems RZ, Hoang N, Chenier S, Stavropoulos DJ, Pu S, Weksberg R, Shuman C. Capturing the clinical utility of genomic testing: medical recommendations following pediatric microarray. Eur J Hum Genet. 2015 Sep; 23(9):1135-41. PMID: 25491637.
      View in: PubMed
    31. Nicholls SG, Tessier L, Etchegary H, Brehaut JC, Potter BK, Hayeems RZ, Chakraborty P, Marcadier J, Milburn J, Pullman D, Turner L, Wilson BJ. Stakeholder attitudes towards the role and application of informed consent for newborn bloodspot screening: a study protocol. BMJ Open. 2014 Nov 24; 4(11):e006782. PMID: 25421341.
      View in: PubMed
    32. Anderson JA, Hayeems RZ, Shuman C, Szego MJ, Monfared N, Bowdin S, Zlotnik Shaul R, Meyn MS. Predictive genetic testing for adult-onset disorders in minors: a critical analysis of the arguments for and against the 2013 ACMG guidelines. Clin Genet. 2015 Apr; 87(4):301-10. PMID: 25046648.
      View in: PubMed
    33. Nicholls SG, Wilson BJ, Etchegary H, Brehaut JC, Potter BK, Hayeems R, Chakraborty P, Milburn J, Pullman D, Turner L, Carroll JC. Benefits and burdens of newborn screening: public understanding and decision-making. Per Med. 2014 Aug; 11(6):593-607. PMID: 29758802.
      View in: PubMed
    34. Bombard Y, Miller FA, Hayeems RZ, Barg C, Cressman C, Carroll JC, Wilson BJ, Little J, Avard D, Painter-Main M, Allanson J, Giguere Y, Chakraborty P. Public views on participating in newborn screening using genome sequencing. Eur J Hum Genet. 2014 Nov; 22(11):1248-54. PMID: 24549052.
      View in: PubMed
    35. Szego MJ, Meyn MS, Anderson JA, Hayeems R, Shuman C, Monfared N, Bowdin S, Shaul RZ. Predictive genomic testing of children for adult onset disorders: a Canadian perspective. Am J Bioeth. 2014; 14(3):19-21. PMID: 24592833.
      View in: PubMed
    36. Aiyar L, Shuman C, Hayeems R, Dupuis A, Pu S, Wodak S, Chitayat D, Velsher L, Davies J. Risk estimates for complex disorders: comparing personal genome testing and family history. Genet Med. 2014 Mar; 16(3):231-7. PMID: 24009002.
      View in: PubMed
    37. Hayeems RZ, Miller FA, Carroll JC, Little J, Allanson J, Bytautas JP, Chakraborty P, Wilson BJ. Primary care role in expanded newborn screening: After the heel prick test. Can Fam Physician. 2013 Aug; 59(8):861-8. PMID: 23946032.
      View in: PubMed
    38. Miller FA, Hayeems RZ, Bytautas JP, Bedard PL, Ernst S, Hirte H, Hotte S, Oza A, Razak A, Welch S, Winquist E, Dancey J, Siu LL. Testing personalized medicine: patient and physician expectations of next-generation genomic sequencing in late-stage cancer care. Eur J Hum Genet. 2014 Mar; 22(3):391-5. PMID: 23860039.
      View in: PubMed
    39. Hayeems RZ, Miller FA, Bytautas JP, Li L. Does a duty of disclosure foster special treatment of genetic research participants? J Genet Couns. 2013 Oct; 22(5):654-61. PMID: 23681280.
      View in: PubMed
    40. Hayeems RZ, Miller FA, Bombard Y, Avard D, Carroll J, Wilson B, Little J, Chakraborty P, Bytautas J, Giguere Y, Allanson J, Axler R. Expectations and values about expanded newborn screening: a public engagement study. Health Expect. 2015 Jun; 18(3):419-29. PMID: 23369110.
      View in: PubMed
    41. Miller FA, Hayeems RZ, Li L, Bytautas JP. One thing leads to another: the cascade of obligations when researchers report genetic research results to study participants. Eur J Hum Genet. 2012 Aug; 20(8):837-43. PMID: 22333903.
      View in: PubMed
    42. Bombard Y, Miller FA, Hayeems RZ, Carroll JC, Avard D, Wilson BJ, Little J, Bytautas JP, Allanson J, Axler R, Giguere Y, Chakraborty P. Citizens' values regarding research with stored samples from newborn screening in Canada. Pediatrics. 2012 Feb; 129(2):239-47. PMID: 22250019.
      View in: PubMed
    43. Bombard Y, Miller FA, Hayeems RZ, Wilson BJ, Carroll JC, Paynter M, Little J, Allanson J, Bytautas JP, Chakraborty P. Health-care providers' views on pursuing reproductive benefit through newborn screening: the case of sickle cell disorders. Eur J Hum Genet. 2012 May; 20(5):498-504. PMID: 22071888.
      View in: PubMed
    44. Miller FA, Hayeems RZ, Li L, Bytautas JP. What does 'respect for persons' require? Attitudes and reported practices of genetics researchers in informing research participants about research. J Med Ethics. 2012 Jan; 38(1):48-52. PMID: 21685149.
      View in: PubMed
    45. Hayeems RZ, Miller FA, Li L, Bytautas JP. Not so simple: a quasi-experimental study of how researchers adjudicate genetic research results. Eur J Hum Genet. 2011 Jul; 19(7):740-7. PMID: 21407262.
      View in: PubMed
    46. Miller FA, Hayeems RZ, Bytautas JP. What is a meaningful result? Disclosing the results of genomic research in autism to research participants. Eur J Hum Genet. 2010 Aug; 18(8):867-71. PMID: 20234389.
      View in: PubMed
    47. Bombard Y, Miller FA, Hayeems RZ, Avard D, Knoppers BM. Reconsidering reproductive benefit through newborn screening: a systematic review of guidelines on preconception, prenatal and newborn screening. Eur J Hum Genet. 2010 Jul; 18(7):751-60. PMID: 20197792.
      View in: PubMed
    48. Miller FA, Paynter M, Hayeems RZ, Little J, Carroll JC, Wilson BJ, Allanson J, Bytautas JP, Chakraborty P. Understanding sickle cell carrier status identified through newborn screening: a qualitative study. Eur J Hum Genet. 2010 Mar; 18(3):303-8. PMID: 19809482.
      View in: PubMed
    49. Bombard Y, Miller FA, Hayeems RZ, Avard D, Knoppers BM, Cornel MC, Borry P. The expansion of newborn screening: is reproductive benefit an appropriate pursuit? Nat Rev Genet. 2009 Oct; 10(10):666-7. PMID: 19763150.
      View in: PubMed
    50. Miller FA, Hayeems RZ, Bombard Y, Little J, Carroll JC, Wilson B, Allanson J, Paynter M, Bytautas JP, Christensen R, Chakraborty P. Clinical obligations and public health programmes: healthcare provider reasoning about managing the incidental results of newborn screening. J Med Ethics. 2009 Oct; 35(10):626-34. PMID: 19793944.
      View in: PubMed
    51. Miller FA, Hayeems RZ, Carroll JC, Wilson B, Little J, Allanson J, Bytautas JP, Paynter M, Christensen R, Chaktraborty P. Consent for newborn screening: the attitudes of health care providers. Public Health Genomics. 2010; 13(3):181-90. PMID: 19776551.
      View in: PubMed
    52. Hayeems RZ, Miller FA, Little J, Carroll JC, Allanson J, Chakraborty P, Wilson BJ, Bytautas JP, Christensen RJ. Informing parents about expanded newborn screening: influences on provider involvement. Pediatrics. 2009 Sep; 124(3):950-8. PMID: 19706578.
      View in: PubMed
    53. Miller FA, Hayeems RZ, Robert JS. Carrier detection and clinical uncertainty: the case for public health ethics. Am J Public Health. 2009 Aug; 99(8):1349-50. PMID: 19542029.
      View in: PubMed
    54. Miller FA, Robert JS, Hayeems RZ. Questioning the consensus: managing carrier status results generated by newborn screening. Am J Public Health. 2009 Feb; 99(2):210-5. PMID: 19059852.
      View in: PubMed
    55. Hayeems RZ, Bytautas JP, Miller FA. A systematic review of the effects of disclosing carrier results generated through newborn screening. J Genet Couns. 2008 Dec; 17(6):538-49. PMID: 18956236.
      View in: PubMed
    56. Hayeems RZ, Geller G, Finkelstein D, Faden RR. How patients experience progressive loss of visual function: a model of adjustment using qualitative methods. Br J Ophthalmol. 2005 May; 89(5):615-20. PMID: 15834096.
      View in: PubMed
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